Government must ‘act now’ to introduce a national register of children with cerebral palsy, says charity

Wednesday, January 16, 2019

According to Action Cerebral Palsy's chief executive Amanda Richardson, too many children with the condition in the UK are missing out on appropriate models of intervention or the right funding because services are a ‘postcode lottery’.

Action Cerebral Palsy is calling for the government to support a wide-ranging strategy with the potential to significantly boost these children’s health and early education outcomes, while supporting their families.

The impetus behind the move is based on pioneering intervention models used in Australia, which are flagged up in Action for Cerebral Palsy’s new report. Australia is a world leader in the treatment of cerebral palsy, and has improved outcomes for babies and children with the condition.

A key strategy being called for is to create a national register of children with cerebral palsy which will give local government, education services and the NHS a clear insight into how best to direct services and funding

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